(kids) where do I get off from this crazy ride?

What emotions ride through your soul as you journey with your kids day after day in the hospital clinic world and wishing they were doing ordinary kids activities instead.

The novelty of it all is wearing thin, if you could call it by those words.

A day in the life of special needs mom:
Tomorrow is speech therapy at 9:30am then off to the rehab clinic by 11am across town for doctors and therapists to evaluate my son's new braces with walking. (He will have probes all over his legs to see how his muscles are contracting or not doing much at all) Grab some lunch and off to Ophthalmology at 2pm for my son's eye tests to check post op how he is doing and then get him ready for his next eye surgery June 1st.

All 3 appts are for 3 different kiddos with all 4 in tow.

Then Saturday is a brain/spine MRI for my son who is having new issues neurologically and is causing him grief.

Sunday is Mother's Day: a respite from it all and just kick back and enjoy my family.

Then back in full swing Monday with the MRI follow up with the neurosurgeon and find out where do we go from here.

I am taking a deep breath as I think this all through.

I share my life not so people feel sorry for me, that is not what I ask.

I come across as a person who is so strong and put together, but really we are all struggling in the inside in some form or another.

My heart aches, my eyes feel like crying, and sleep seems like an enemy to me as I toss and turn at night.

I will get through this, I always do, but it is nice to know someone cares and is listening. Who does not mind hearing the struggles of a weary mom trying to be there for their kids and muddling through it the best way she can.

Hope is my miracle drug. Hope for healing, for strength and to be compassionate for my kids.

I have always prayed God would provide a way for major medical issue to come up only one at a time, especially with my child with spina bifida. Now I am asking for God to spare me from multiple issues with multiple children at the same time.

Praying for no more complications, no more surgeries than needed, no more physical discomfort, and acceptance of things that cannot be changed.